Hello from Texas.....we are the Brown family. My name is Lisa and my husband is Steve, and our two boys from left to right are Landon (8), and Logan 12.
Logan was born with Apert Syndrome on January 18, 2002 at Harris Methodist Hospital in Fort Worth, Texas, and also has a diagnosis of ADHD. We are very fortunate to be close to our craniofacial team here in Dallas, as it is only about a 2 hour drive for us. We live in Weatherford, Texas, which is just outside the metroplex of Fort Worth, and enjoy living in the "country." I have been a special education teacher for 12 years, and my husband was a former teacher/coach, but now works for the railroad at BNSF as a dispatcher.
Logan has had a total of 11 surgeries - 5 of them were cranial vaults, 2 syndactyly releases, LeFort III (mid-face advancement - attach and removal), arterial tear coil clamp, and a palletal fistula repair. Our next adventure will most likely be orthodontia. Oral appliances, braces, etc...here we come!!
We are a very blessed family, and thank God everyday for the blessings He has given us, through the good times and the very tough times.
Logan has inspired us and taught us more things than I can even mention through his strength, courageousness, and perseverance.
I have recently entered into the world of "blogging," and find that it is a wonderful tool. It has helped, not only to share our story, but to connect with others and hope that families with children who have craniofacial differences can relate in some way, and feel that they are not alone. It has taken me 12 years to get to this point, to reach out, and am so thankful that I have. If you ever want to visit my blog, go to: onerealhero.blogspot.com, or it is also posted on the CCAKids Family Blogs under the Apert Syndrome link.
I am still an amateur at blogging, but would welcome feedback from experienced bloggers.
-Lisa
No comments:
Post a Comment
We welcome and encourage all readers to post feedback, however, we reserve the right to remove any comments that are deemed offensive or unrelated to the topic of discussion. Thank you for understanding and for helping us to foster a healthy environment for the families that we serve.