Thursday, May 11, 2017

#ThankfulThursday: Rare on the Road, Increasing Information & Advocacy


Here at CCA we are always grateful for opportunities to connect and learn from one another. This #ThankfulThursday, we present to you Rare on the Road. 

Global Genes and the Every Life Foundation bring awareness and advocacy training on the road in this innovative three-city event. The flyer below explains more about what they hope to accomplish with patients and caregivers. An agenda for each stop outlines the general scope of the day's events in Atlanta, GA, Kansas City, MO, and Portland, OR. This looks to be a wonderful opportunity for everyone to learn the power of their personal stories. See you on the road!






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