Contributors

Meet Kara...
Kara is an Archivist at Boston University by day and a freelance writer by night. Her work has appeared in a number of regional, Massachusetts newspapers, non-profit newsletters, and Sports of Boston, blog. A diehard Boston Red Sox fan since childhood, she contributes to the Not Your Average Sports Chick and Cleat Geeks blogs. Her interests are many and varied thanks to her four years at the College of the Holy Cross. At http://www.karajackman.com, she blogs about music, fitness and self-improvement. Kara resides in a suburb just outside the city of Boston.

Meet Dede...
Dankelson Family - June 2012
Dede serves as Vice-Chair for the CCA Board of Directors and is a married hockey mom of two boys:  Peter, 13 and Jacob, 9.  Peter was born premature with Goldenhar Syndrome and spent his first 3 ½ months in the NICU.  He came home from the hospital with a trach, feeding tube, and oxygen.  Jacob is unaffected, enjoys playing hockey, and is driven to win at anything he deems a competition -- which is basically everything.  Peter is an avid reader, a walking encyclopedia of Star Wars, and a fan of playing jokes with his prosthetic ear.  The Dankelson’s live in metro Detroit and have been involved with CCA for several years, hosting family fundraisers and spreading awareness about craniofacial differences whenever and wherever they can.


Erica & Her Husband, Jacob
Meet Erica...
Erica Crabtree Mossholder is a young professional living in Huntsville, Alabama. She serves as Treasurer on the CCA Board of Directors. Erica has an undiagnosed craniofacial anomaly and an undying love for college football, vintage furniture, fashion blogs and activism. Erica believes that the cure for life is a daily dose of green leafy vegetables, a long run and a lot of laughing. 












Meet Stephen...
Stephen is 43 years old and works in San Francisco at Wells Fargo Bank. He is a graduate of San Francisco State University where he completed an MBA. Stephen is a published writer with two articles published in PARADE magazine  (including interviews with Cher and the late Dr. Paul Tessier.) He has also been featured in a Canadian magazine about craniofacial issues. He has 22 nieces and nephews and one great nephew (all scattered throughout the United States).

Stephen has Crouzon’s Syndrome and has had 23 surgeries, including complete reconstruction of the face as well as skull restructuring.  He has been affiliated with CCA since 1990 and served on the CCA Board from 2003-2011.








Meet Russel...
Russel Newman is the proud father of Nathaniel Newman, a 10-year-old boy with Treacher-Collins Syndrome. He and his wife, Magdalena, also have a wonderful 7- year-old son, Jacob. Russel and his family recently relocated to Short Hills, New Jersey, where he works as a Vice President of Sales for a Multi-National Insurance Company. Russel was born in and raised in the New York area, attended Alfred University in upstate New York and received his law degree from California Western School of Law in San Diego, CA. The Newmans have been patients at The Institute for Reconstructive Plastic Surgery at NYU Langone Medical Center since Nathaniel's birth. When not working, Russel and his family work tirelessly to promote the cause of Children with Differences.

Meet Sabrina....
Sabrina is in her 4th year of university, majoring in Health Psychology. She is set to graduate in June! Her career goal is to become a child life specialist so that she can provide comfort and help children who are going through tough medical procedures.


Sabrina was born with Pfeiffer Syndrome and a congenital heart defect. She has had 21 surgeries (including 3 open-heart surgeries). She joined CCA in 2005 and enjoys attending the Family Retreat every year. Nothing makes her happier than being surrounded by her CCA friends.