Showing posts with label Jaw Distraction. Show all posts
Showing posts with label Jaw Distraction. Show all posts

Saturday, July 30, 2016

Ask the Doctor: Why do you leave distraction device on so long?

CCA posts a monthly blog series called, "Ask the Doctor." You can submit your questions to Annie Reeves ([email protected]) and we will ask Dr. Earl Gage of Kids' Plastic Surgery in St. Louis to answer them. Thanks Dr. Gage for helping spread information and resources for our cranio families!

Ask the Doctor

Earl Gage, MD, Kids Plastic Surgery, MercyChildren’s Hospital
Ask The Doctor
Earl Gage, MD
Kids Plastic Surgery, Mercy Children’s Hospital – St Louis, MO

Question: My five year son had his frontal advancement procedure done one month ago. The doctor told us that it would take about two months for the halo to complete the process. Last week the doctor then made the decision to remove the halo because some of the hardware had loosened, a cord was damaged and one of the sites was getting infected.  He said the advancement was already done anyway. My question is if the halo completes its job when it doesn't need turning anymore why do they leave it on for such of long time?

Answer:  Distraction osteogenesis involves cutting a bone and then slowly lengthening the bone by applying a constant steady force. In order to understand the phases of distraction and why we leave the halo on even after the work of moving the bone is done, it helps to first understand what happens when a bone is broken and needs to heal.

When a bone is fractured, the body begins the healing process by stimulating cartilage and bone producing cells at both ends of the fracture to begin laying down new hyaline cartilage and woven bone in an effort to bridge the fracture gap. This new tissue spanning the fracture is called a callus and is relatively soft. Once the gap is bridged, the callus tissue is eventually replaced with stronger lamellar bone. Additional biologic changes and modifications of the bone occur until complete healing is accomplished. During the process of fracture healing, it is necessary to have good blood supply, good nutrition, good alignment of the fracture edges and good bone immobilization. Fracture healing often takes 4-6 weeks or longer.

Beginning in the early 1900’s some physicians realized that bone could be lengthened applying tension to the bone while in the callus phase of healing. If you lengthen the bone at just the right rate, you can continue to lengthen the bone at the callus while new bone is being formed just behind the callus.  In essence you stay just ahead of where the bone is becoming solid and stretch the soft stuff.

Once you have achieved your bone-lengthening goal, you then stop applying the lengthening force to the bone and instead try to provide stability and immobilization of the fracture so that bone healing catches up and the bone becomes strong. 

The reason, therefore, that there is a period of time after you are done turning the screws is to provide stability to the bones while the bone healing “catches up” and makes the bone solid and strong. This is called the consolidation phase of distraction and may take 4-6 weeks to allow full healing to occur. If the distractor is removed too early, while the bone is still healing and relatively soft, then there is a risk that you could lose some of your gains or that the fracture may not heal appropriately. 

Although we all want to have the distractor in place through consolidation, there are times when the distractor mechanism needs to be removed early. Reasons for early removal can include infection, malfunction or accidental dislodgement. Depending on when this occurs in the process of distraction and consolidation, the surgeon then has to make a judgment whether the bone is sufficiently solid to allow removal or if something else needs to be done to provide stability while the fracture continues to heal. A decision to put a new halo on is a decision based on risks and benefits of another surgery. From what you describe, it sounds as though your surgeon felt that things would be sufficiently stable to allow early removal.


I hope this helps answer your question, and I hope your son recovers well from his surgery.

Tuesday, June 28, 2016

Ask the Doctor: TMJ Joint Replacement

CCA posts a monthly blog series called, "Ask the Doctor." You can submit your questions to Annie Reeves ([email protected]) and we will ask Dr. Earl Gage of Kids' Plastic Surgery in St. Louis to answer them. Thanks Dr. Gage for helping spread information and resources for our cranio families!

Ask the Doctor

Earl Gage, MD, Kids Plastic Surgery, MercyChildren’s Hospital
Ask The Doctor
Earl Gage, MD
Kids Plastic Surgery, Mercy Children’s Hospital – St Louis, MO

Question: We are considering a new procedure for Peter's upcoming jaw surgery.  It involves a TMJ joint replacements (vs a rib graft & jaw distraction).  The company making the joint is TMJ Concepts (www.TMJConcepts.com) in California.  I'd love to hear if Dr. Gage has any thoughts about this new procedure.

Answer: Thanks for your question. I do not have any personal experience with artificial TMJ replacement in children. At the most recent meeting of the American Cleft Palate Association in Atlanta, I asked a number of my colleagues and mentors if they had any experience or thoughts, as well. Nobody I spoke with had ever used an artificial joint in a child. None of my colleagues were aware of any surgeon who is doing a large volume of artificial joint replacements in children either.

I would be concerned about placing an artificial TMJ replacement in a child because no artificial joint is likely to last a lifetime, particularly when you consider the high load and stress placed on the TMJ. This makes future replacement surgery likely, in contrast to using bone and cartilage which is perhaps more likely to last. In addition, I worry about how the changing, growing facial skeleton will affect an artificial joint since the artificial material will not grow and change with your child. Finally, any time you place something artificial in the body, whether it is an artificial knee, an artificial heart valve or a synthetic facial implant, there is a risk of that artificial material becoming infected and needing to be removed. When biologic tissue (like bone or cartilage graft) is used, this risk is much, much lower.

I recognize that innovation and technologic advancements in joint replacement may produce an artificial joint that outperforms bone grafts. At this time, however, I am not sure there is enough data and experience to recommend it if bone grafting is also an option.


Sunday, February 3, 2013

Breaking Free of the Braces!

This Sunday I'm grateful for Peter's beautiful new smile.  He had his braces removed last week after wearing them for only a year and a half.  It's amazing to me how quickly they make a difference and how fast they can be removed now.  Back in my day braces were for high school and you were lucky to get them off in time for senior pictures!

I was particularly eager for Peter to have the braces removed because of recent concerns about his speech.  Increased drooling, difficultly swallowing, poor articulation, and sleep/apnea patterns are primary indicators that let us know more jaw reconstruction is necessary.  We are hoping to hold off on surgery for another year or two, but it is always hanging over our heads as to when the time will come.  All those concerns made me anxious and hopeful that Peter's speech and increased drooling would improve once the braces came off.

Much to my relief, Peter's speech was better without the braces.  His freedom was short lived, however, once he was fitted for retainers.  Unfortunately, his speech with the retainers is even worse than it was with the braces.  If Peter didn't have the craniofacial hurdles to overcome, he would wear both retainers 24/7 for the next month.  Because his mouth is so small, we are only having him wear the top retainer at school.  It is very challenging for Peter to speak and breathe while wearing both retainers at the same time. He is able to manage it while sleeping though.  Eventually (after about 1-2 months), he should only need to wear them both at night and be appliance free during the day.

It was so fun to see Peter smiling from ear to "ear lobe" (wink, wink) as he left the orthodontist without his braces.  Our orthodontist has been fantastic in adjusting Peter's treatment to accommodate his craniofacial anomalies.  The entire experience, although far from over, has been much smoother than I expected.  The results?  Well I may be prejudiced, but I think he looks quite handsome!







P.S. Peter and I had a giggle fest while I was taking a picture of him for this post.  I said, "You are cracking me up with your posing and cheesy smile."  His reply, "Yeah, that's what I was going for." Another thing I'm grateful for.....  such an amazing son that makes me laugh so much!

Sunday, June 10, 2012

This Sunday I'm Grateful for...


"This is the second post  in our "Grateful Sunday" series.
In addition to reading our posts here on the blog, 
follow CCAKids on Twitter and Like CCA on Facebook 
where we will be posting things we are grateful for every Sunday. 
We would love for you to participate!  
Use the hashtag #GratefulSunday **


A few weeks ago Peter had a follow up appointment with his craniofacial surgeon.  The surgeon performed her annual exam, looked at me, and said, “I wouldn’t touch him until he’s 16 and needs a final jaw surgery.”  “Really,” I said?  “Unless, he is unhappy with his appearance and wants something done sooner” was her reply.  She recommended that we consult with Peter’s oral surgeon who, she said, will be the specialist to perform his final jaw distraction/placement.  We haven’t had that appointment yet, but I’m still shaking my head in disbelief.

I guess this next major surgery has been hanging over our heads for so many years, that I’ve just learned to live with the possibility and not dwell on when it will actually happen.  When Peter was 2-3 years old, he had the rib bone graft to his mandible followed by jaw distraction.  The distraction left as many permanent scars on me as it did on Peter.  It was, by far, the worst of his surgeries.  After two weeks of turning the pins three times a day with Peter screaming his head off every time, we ended up back in the hospital due to an infection from the appliance.  That was followed by a week-long stay and discharge with a PICC line for continued I.V. antibiotics at home.  Most patients don’t have such complications from jaw distraction, but, unfortunately, Peter did.  The positive outcome from the surgery is that he was decannulated (trach removed) about six months after the distraction.  The negative is that over seven years later he still has an open stoma (too long of a story for this blog post).

Peter is now 11 and 16 is really not far off, especially when I think of how quickly time is passing.  It seems like just last week I was sitting outside the door of his preschool not leaving for fear that his trach would need suctioned and the staff would not know how to handle it.  We’ve both come a long way from those days; me on learning to trust and let him go and him on becoming more independent and learning responsibility.  As Peter makes the transition to middle school this fall, we will both have to continue growing in those capacities.  This Sunday I’m grateful for Peter’s capable surgeons and wonderful teachers who have influenced our lives in so many positive ways.

Have a safe and happy summer everyone!