Wednesday, May 23, 2018

Travel Tips for Salt Lake City: Sights, Bites, and More

By Kara Jackman

Little America Hotel Pool, Salt Lake City, UT

I love to travel! One of my favorite websites for travel is Lonely Planet. (I have mannnny, but this is where I love to start!) There is always a tidbit of information that I did not know that I learn on this site. It also points me in the direction of other great travel resources for my destination du jour.

Well, we are all headed to Salt Lake City next month, so I started to take a look at what's popping in the capital of Utah. Our friend, Jenna, told me that people with disabilities receive free access to the National Parks. I had to double check it, because I just could not believe it. It was too good to be true! Turns out Jenna was right. Lonely Planet confirmed it on this page.  It also provides a comprehensive list for the Southwest and West of other places that are friendly to those with disabilities, wheelchair, and other assistive devices. How Cool!!!

Arches National Park

I hope these resources are helpful for those that may be driving to retreat. Arches National Park, Bruce Canyon, and parts of Zion National Park are all about 3 or more hours away from Salt Lake City. You can learn more about the Utah parks .

In order to see the best sites and enjoy the best eats, I also love to check out the hotel website for suggestions, too. As you know, we will be staying at the Little America Hotel. Their website has a Local Activities menu  where they suggest places to eat, play, and shop. The best advice I ever got about travelling is to talk to the concierge. They will be able to find exactly the kind of place you may be looking for whether it be the local diner for breakfast and a new gastropub for dinner. They will also know where the closest pharmacy, grocery store, and big box stores are in case you or your kids forgot something important.

Pro tip...Always ask where the locals go, there is sure to be good food and good times wherever they go. Additionally, here are some great restaurants and shops that my favorite Boston Globe travel writers mentioned in an article about Salt Lake City. A couple restaurant suggestions are The Copper Onion and Trio Downtown. A fun place to shop looks like Unhinged Boutique. Art lovers should check out the Art Salt Lake website. (Learn more about other Salt Lake City hotspots in the link at the bottom of the article.)

Finally to uncover even more possibilities, I plan on going to my local library to either borrow a travel book for the area, or download one to my smartphone or Kindle. It's a nice idea because you will have a map of the city before you arrive. You can plan you adventures ahead of time based on your interests. I love travel books. They are THE one item I look for in used book stores for their beautiful photography and information.

Now you are ready for Salt Lake City! See you all soon!

*More suggestions abound in this Boston Globe article

Friday, May 18, 2018

Apert Syndrome Study Participants Needed

Dr. Drorit Gaines in California is conducting research on the connection between ADHD, Autism and sensory disorders among children born with Apert Syndrome. Please read the flyer below and contact Jackie Shaib, Research Coordinator, if you would like to participate in this significant study that could improve the quality of life for your son or daughter. 

Wednesday, May 16, 2018

May 31st Deadlines for Annual Retreat and Educational Symposium

REMINDER: Please make sure you send Annie Reeves ( the following information by May 31st. 
1. The symposium sessions you and your family members will be attending. (If you will be using childcare, please email your completed form directly to the company, not me, by May 31st.)
2. If you will be needing a Veggie Burger instead of a Hot Dog during Saturday's provided lunch, please email me.
3. If you or anyone from your family won't be eating one of the provided meals, I need to know so I can remove you from my head count.

Thank you all for being so awesome! See you next month!

Wednesday, May 9, 2018

Camp Cosmos New Location & Registration Information

Our friends at ConnectMed are enthused about the overwhelmingly positive response they received about Camp Cosmos on Sunday, July 22nd. Now ready for a larger crowd, they changed the location to Camp Cahito at San Diego's Balboa Park. Lunch will be provided, too. 

You can now register for this incredible opportunity open to kids that live in the Southern California and Southwestern states! Check out the updated flyer below. 

For questions and more contact Dana at

Register Today!

Monday, May 7, 2018

Tony's Kids Can, Through May 11th Raise $5,000, Get $5,000 In Matched Donations!

Children's Craniofacial Association is a family. We want every member of our family to do their part to raise funds for the Tony Stewart Foundation's newest campaign "Tony's Kids Can." If we raise $5,000 by Friday, May 11th, then our donations will be matched, dollar for dollar. This would result in  $10,000 being raised for CCA. For many years, Tony Stewart Foundation helped CCA kids through grants and other financial support. Today they continue their work for us through the Tony's Kids Can. This opportunity is unique due to the one week, double impact challenge.  In order to be successful, everyone must come together and work as a team to advance CCA to the finish line on Friday, May 11th for the matching $5,000. 

The how is up to you. The why is for the kids. 

There are two ways to donate. You can donate to the already existing, online fundraisers, or create your own page.You can raise money by holding a yard sale, lemonade stand, dance-a-thon, road race, or just by spreading the word on social media. Here are more suggestions from the Tony Stewart's Foundation website. Whatever you do, do it with all your heart...because, like Tony says, "it's all about heart!"

Here is the press release from the Tony Stewart Foundation that explain more about the fundraising process, what organizations Stewart chose to benefit, and plans for future fundraising efforts that will begin in Fall 2018. 

-Kara J. 

Teamwork to Fund Children’s Charities Initiated by Tony Stewart’s Foundation (Indianapolis, IN / May 1, 2018) – Tony Stewart, 3-time NASCAR Series Champion is a self-proclaimed “softie” for helping children and animals through his named foundation. Tony personally raises a lot of funds for his foundation’s grant program that monetarily awards outstanding organizations providing programs and services helping children with critical illness or physical disabilities as well as animals at-risk.

Kicking off May 2 and running for the next 90 days, Stewart has issued a challenge to race enthusiasts along with everyone who cares deeply about children’s health and wellness. Stewart remarked, “ Over the years I’ve met so many of these kids and have continued to be struck by their can-do attitude. I decided it was time to show these great kids that others are willing to step in and show our ‘will-do’ support by raising funds among family, friends, neighbors and colleagues.”

Tony’s Kids Can, an online peer-to-peer giving program, is designed to encourage creative, thoughtful and fun fundraising practices for donors, resulting in contributions to the foundation and to its grant partners. Financial contributors to the campaign can make an individual donation, but are encouraged to involve others in their fundraising paired with various activities and promotions. “We want to turn fundraising into FUNdraising,” says Stewart.

“The goal of the program is to mobilize groups of kind-hearted people to raise funds in creative ways while having fun and creating community,” says Pam Boas, Stewart’s mom and treasurer of the board of directors. We envision backyard BBQs and wine tastings alongside children’s movie night and lemonade stands among what’s certain to be wildly creative ways to have fun while raising money for the grant program.”

More than half of the current foundation’s grant partners serving children have elected to participate in Tony’s Kids Can. Next, starting early fall, a second campaign will feature the grant partners provided services and rescue for at-risk or endangered animals.

Stewart is seeking teammates of all ages to join his Tony’s Kids Can effort. Kids are encouraged to participate to not only help other kids but to learn a bit about philanthropy in the process. Stewart’s goal is to raise at least $60,000 that will directly benefit these children’s charities through the foundation’s grant program.

Together we will Accelerate Change for children. These kids have a can-do attitude and spirit. Do you? Please visit the Tony’s Kids Can campaign to see how you can join the team -