Tuesday, November 29, 2016

It's Giving Tuesday!

Today provides you with an opportunity to start the holiday season off on the right foot by donating to CCA this Giving Tuesday. You may have started your Christmas shopping on Black Friday and continued yesterday, on #CyberMonday, but today you can give back!

Today you can give the gift that keeps on giving to CCA families and kids that need your support through programming and trips to quality medical centers and hospitals for treatment of their craniofacial differences. You can also send a family to our Annual Family Retreat & Educational Symposium, where many kids see others that look just like them, for the very first time. It is a very powerful weekend. With your donation, you can make the retreat weekend in Reston, VA in 2017 possible for a family.

Please share with us today the gifts of good health, acceptance, and love. Three things that never go out of style!

Read more about the history of #GivingTuesday here: https://www.givingtuesday.org/
And don't forget to let others know you donated to CCA on social media by using the hashtag #GivingTuesday. 

Thank you! 

Tuesday, November 22, 2016

Get Ready For Giving Tuesday

Giving Tuesday, what's that?

It is a day to give thanks and donate to your favorite non-profits as we kick off the holiday season. There's Black Friday, then Cyber Monday... then the universal day to give back, Giving Tuesday. Please participate by donating to CCA via our special donation page located here: http://bit.ly/givetues16

For those of you who are able, please consider a gift of $500 or more, because from now until the end of the year, CCA has received a special Challenge Match Grant, which will match all donations dollar-for-dollar, up to $25,000.

To be honest, individual contributions have been down this year, so this Challenge Match Grant is especially important to help us close our funding gap. We are so grateful for this opportunity and we hope you will help us continue funding our critical work of providing travel assistance for medical travel, the Annual Family Retreat & Educational Symposium, and our website which directs families to qualified medical centers.

Monday, November 21, 2016

Deaf-Friendly Games for Kids Parties

Editor's Note: Daisy Welch of the Wooden Toy Shop located in Lancashire, United Kingdom has some great suggestions for kids party games. The games are perfect for all children, especially those with hearing trouble. What better time for games than now as we gather with family and friends to celebrate Thanksgiving and the Winter Holidays. Enjoy!

By Our Friends at the Wooden Toy Shop, Lancashire, United Kingdom

While its natural to worry about all the children feeling included in a kids party, there really is no need to worry if you throwing a party with a deaf child in attendance. There are loads of great games that all children, and quite a few adults, will enjoy. Here are some of our favorite party games and tips for throwing an inclusive children's party. These games are ones you will probably already know, but with fun twists to make them more inclusive and even more fun!

Deaf-friendly games for a childrens party

Thursday, November 17, 2016

Thankful Thursday: Video

By Kara Jackman

There are so many gifts that come along with being different. We experience different points of view, are able to put things in perspective, and perhaps, most importantly, laugh. So today on this Thankful Thursday, I hope these short videos find you grateful and living a life filled with laughter. It is, after all, the best medicine.

A big thank you to the Facing Advocacy Tumblr page for sharing these videos with the world.

Wednesday, November 16, 2016

Francis Smith: Patient, Researcher, and Inspiration

By Kara Jackman

In September, CCA Kids Blog covered one of our members, Emily Paulson, that went from patient to nurse. Francis Smith turned his adversity into positivity, too.  Motivated by his facial difference, Treacher Collins, Smith works as a dental researcher at the University of Colorado. He provides other researchers and doctors with whom he works with the much needed patient perspective. Smith is very inspirational and has a recurring series on our blog called "From the Bench," where he shares he experience and hope with the CCA community.

In October, the University of Colorado Anschutz Medical Campus wrote a piece for their online newspaper CU Anschutz Today. Guest contributor, Debra Melani, interviewed Smith about his life, surgeries, strength, and the work that must continue to help benefit future people with genetic disorders.

Smith researches, "bioinformatics and genome analysis of embryonic tissue under the supervision of CU School of Dental Medicine Associate Professor Trevor Williams, PhD." Smith is also an advocate and spokesman for those with craniofacial differences. He has written blogs and spoke in many places around the globe.

Learn more Smith, his work, devoted adopted mother, and perspective on life in the article published on the CU Today website. In case you missed it in a previous blog post, view the video below, too, where Smith discusses Treacher Collins and his work with scientist, Michael Rape, of the University of California, Berkeley.