EDITOR'S NOTE: This Moebius Syndrome Foundation Interview study hopes to focus on learning from people whom have facial differences when they decide to disclose their differences with friends. Study participants will receive a $15 Amazon gift card for their time and answers.
Read more about the study below. The image above features all the same information that appears below!
Introduction and Study Details
We want to learn about the experiences of people with facial differences in deciding whether or not to discuss their difference with other people. Do you have a facial difference of any kind (for example, cleft lip/palate, burns, a scar, hemifacial microsomia, Moebius syndrome, facial paralysis, Treacher Collins syndrome, or a skin conditions)? Have you discussed your facial difference with friends, colleagues, romantic partners, etc.? What was the outcome? We want to interview you for a study about if and when you inform other people about your difference.
What would I do as a study participant?
- 30-60 minute interview via phone, video call, or in person
- Get a $15 Amazon gift card
Who is eligible to participate?
- Have any kind of facial difference (that can be covered up or not)
- 18 years or older
- Live in the United States
- Communicates in English
What will we do with the study?
The long-tern goal f this project is to develop recommendations for people with facial differences and their families about discussing facial difference with others.
Who is the principal investigator?
Kathleen Bogart, PhD is an Associate Professor of Psychology at Oregon State University. She studies stigma in facial difference and disabilities, has a facial difference herself, and is an advocate.
To learn more or to participate contact principal investigator Kathleen Bogart, PhD at Kathleeon.firstname.lastname@example.org