Saturday, October 30, 2021

Research Opportunity: Take This Survey On Insurance Coverage and Rare Diseases


Our friends at the University of Nebraska Medical Center need your help. Genetic counseling student, Michelle Willes is conducting "
a research study to better understand the experience of navigating payment and insurance coverage for medical costs associated with a rare disease diagnosis." She invites participants to complete this anonymous survey which will ask about their rare disease diagnosis, experience with health insurance coverage, and awareness of financial resources for people with rare disease diagnoses. The survey should take approximately 15-20 minutes to complete.




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