Tuesday, September 12, 2023

Participate in ELSA Advocacy Day at Home or in Washington, DC Sept. 18 &19

Editor's Note: Our friend Becky Abbott from the National Foundation for Ecotodermal Dysplasias shared this update with us about their upcoming advocacy days on September 18 and 19, 2023 for the Ensuring Lasting Smiles Act (ELSA). You can participate from home or in Washington with NFED, other nonprofits, and friends supporting ELSA. Read more below to find ways you can spread the word and raise awareness about this legislation that "would require all private insurance group and individual health care plans to cover medically necessary services resulting from congenital abnormalities" (NFED.org website). Learn more in this interview with Becky on our youtube channel. 

Advocacy Update

We want to share some exciting news! We have made some additions to our Advocacy Resources webpage to help you advocate for the Ensuring Lasting Smiles Act both in-person and virtually!
  • Updated supporting documents like the ELSA One Pager, Patient Stories and FAQs.
  • A list of all legislators with links to their social media accounts to make it easier for you to tag your legislators in your social posts and ask them to support ELSA.
  • Download and print business cards to hand out to your contacts to encourage them to advocate for ELSA. The cards include a QR code that will take them directly to our easy-to-use advocacy web tool. We are currently updating the web tool, and it will be available to use soon! 

Advocate With Us From Home

Whether you are joining us in Washington, D.C. on September 18 and 19 or advocating from home, here are some action steps to take for ELSA.  Tell everyone you're advocating for ELSA! 
  • MONDAY - Take a picture with the "I'm Advocating for ELSA" sign(either printed or on your computer screen), post to social media, tag your legislators and be sure to use the hashtags #EnsuringLastingSmiles and #NFEDOnTheHill.
  • TUESDAY - Contact your legislators via the NFED web tool or your organization's tool and ask them to become an Original Cosponsor of ELSA for reintroduction in this Congress. We are currently updating the web tool, and it will be available to use soon!  
  • WEDNESDAY - Share the story of why you are advocating for ELSA with a picture of yourself and/or your loved one(s) who would benefit from ELSA's passage.


Share the graphic below on your social media platforms to ask them to join us on Advocacy Day on Capitol Hill from home and support ELSA. 

Use these hashtags when you are advocating:#EnsuringLastingSmiles #NFEDOnTheHill

If you are registered for Advocacy Day on Capitol Hill, it is important you attend virtual training on Tuesday, September 12 at 7:30 p.m. CT. You should have received the Zoom link to join the training at the email you used when registering. Please email Becky at [email protected], if you do not have the Zoom link. Thank you for your continued work for the Ensuring Lasting Smiles Act and those affected by congenital anomalies that would benefit from ELSA!

Check Out Our Day on Capitol Hill T-Shirt

Thank YOU Advocacy Day on Capitol Hill Sponsors!

Organizing and promoting an event like this takes tremendous resources, and we couldn't do it without you. Thank you to Peter and Julie Durand, The Gott-Scott Family, MyFace and Smile Train for sponsoring this fall's event! View All Advocacy Day on the Hill Sponsors.

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