Tuesday, August 2, 2016

CL&P Medical Research Survey

The Family Experiences Survey for Florida Families of Children with Orofacial Clefts 

The Florida Birth Defects Surveillance Program is pleased to announce that we have developed a survey to help families collectively share their experiences in accessing important resources, services, and supports for children birth to 18-years-old born with cleft lip and/or palate. The results of this survey will be used to develop recommendations for improving systems of care here in Florida. We would be very grateful if you could help us reach as many participants as possible.

Please distribute this survey to any parent with a child under the age of 18 who are born with orofacial clefts in Florida. This anonymous survey should take no longer than 30 minutes to complete, and will be distributed throughout the state. Only one survey per family should be completed.
The survey is available online for Florida residents at
  https://usfhealth.az1.qualtrics.com/SE/?SID=SV_blJ6lNvxGvIxlpr
A Spanish version of the survey is currently under development.

Sincerely,


For further information, please contact:

Jennifer Marshall, PhD, CPH                    Russell S. Kirby, PhD, MS, FACE
Research Assistant Professor                  Distinguished Professor and Marrell Endowed Chair
813-396-2672                                            813-396-2347
email: jmarshal@health.usf.edu            email: rkirby@health.usf.edu


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