Sunday, July 12, 2020
Saturday, July 11, 2020
The Libra Internship Program is a paid opportunity for undergraduate students to intern with the Libra Group and its global businesses. Internship roles are available in social responsibility, finance, engineering, human resources, accounting, hotel operations and more. The Summer 2021 program will run from June 7 – August 13, 2021.
If you are interested in applying to the Summer 2021 Libra Internship Program this fall, register below for Libra’s upcoming information session. Please note that slots are available on a first come, first serve basis.
Thursday, September 10th from 5:30-6:15pm EDT: https://bit.ly/2Z28DzY
Friday, July 10, 2020
On July 18 and July 21, join a MED-EL parent workshop that will focus on promoting positive behavior at home using Pyramid Model strategies for preventing challenging behavior in children with hearing loss.
Sign up for this virtual learning opportunity here.
Tuesday, June 23, 2020
Saturday, June 20, 2020
Join FACES: The National Craniofacial Association is happy to announce FACES Virtual Campfires, free online events for children with facial differences and their buddies! Here's just a few of the cool things we'll be doing
Register at http://www.facescamp.org/
National Organization for Rare Disorders
Sunday, June 14, 2020
The sister of Anna Rogers Milican and her students at Cherokee County Career and Technology Center raised around $200 selling paper brains and skulls for CCA! The students in these classes were moved after hearing a speaker's bureau member share their story during a school assembly in February 2020.
Friday, June 12, 2020
Wednesday, June 10, 2020
His CareerBagby toiled away in the minor leagues for three years, perfecting his pitching performance from 1935-1938. Throughout his entire major league career, he would be up and down, between the minors and the big leagues, travelling all around the country playing on teams with wild names like the Little Rock Travelers and the Tampa Smokers.
Bagby Jr. played nine major league seasons spending his first three seasons in Boston from 1938 - 1940, then moving to the Cleveland Indians from 1941-1945. James Elfers, Society of Baseball Researchers (SABR) historian, shares one highlight from Bagby's four seasons with Cleveland, "he was the Indians pitcher in the July 17, 1941 game, which ended Joe DiMaggio's famous 56-game hitting streak." In 1962, Bagby reflected back on that moment saying all he could do was hurl "fastballs." He added, "Joe hit one of them hard, but he just hit it to somebody." That "somebody" was Lou Boudreau, shortstop for the Indians, who flipped the ball to the second baseman for second to first double play, sending DiMaggio back to the dugout.(1)
In 1942 and 1943, Bagby who was then with the Cleveland Indians, had standout seasons with 2.96 and 3.10 ERA respectively and appearances at both All-Star games. He pitched over 270 innings each season, the highest pitch counts of his career. Clearly, when he was on fire he burned brightly. His fastball never let him down, while his off-speed and curve were good to him in a pinch.
Bagby Jr. moved to a reliever role, reducing his innings pitched during the 1946 season. His appearance in the World Series solidified his place in the history books. Bagby and his father Jim "Sarge" Bagby were the first father and son to make appearances in World Series games. His father in 1920 for the Cleveland Indians, and Bagby Jr. in 1946 for Boston.
His Facial Difference and Mid-Century News PhotographyThe jury is still out on whether his cleft was repaired or not. (2) Elfers, of SABR, noted that back in the late 1930s and 1940s, newspaper photographers would doctor photographs to make professional ball players look their best. Elfers says, "photographers seemed to make a point of either not photographing his facial difference or camouflaging it with lighting tricks. In short, it was something he had that almost no one talked about and fewer showed." Elfers reflects further on his newspaper research saying about his facial difference, "the press noted he had it, but I was not able to determine its severity." The newspapers really wanted these giants of the game to look what they thought was "their best."
His Family and Support SystemMany of images we see of Bagby Jr. make it appear that his facial difference was minor. While not much is written about his medical history, some was written about his character. His family was a great support system to him. He would reach out to his father for advice about how to handle life in the "Bigs." Jim had a devoted mother and fiancé, too, his high school sweetheart.
A Boston Globe article dictates a phone conversation with his father the night after his first start in the majors in 1938. The 21-year-old, newly-acquired Red Sox pitcher got the ball on the first game of the season against the World Champion New York Yankees. Boston won the game 8-4. His father says it all when he comments that Red Sox Manager Joe Cronin made the"smartest baseball move he had ever heard of." Bagby Sr. also commented that this start, "was the greatest thing that could have happened to Jim. He'll have confidence now. He's always had courage and he must have needed it to come through under that kind of test."(3) It was really sweet to read this loving exchange among the Bagby family. The bit about his father wanting him to feel confident rings true for all of us with facial differences, for it is all our parents and friends truly desire for us.
Another Boston Globe article published a few months later shows both his mother and fiancé sitting together. A fiercely private player, one of Jim's teammates tipped off the reporters that his mother, Mrs. James Bagby, and fiancé, Miss Leola Hicks, were in town visiting Boston to see Bagby pitch. The two excited women were far from shy with the reporter. His mother says she got such a "thrill out of watching Jim beat the Browns the other day," but that it did not "compare with the feeling that swept over me the night I had learned Jim had won from the Yankees in the opening game of the season." Fiancé, Leola Hicks says they met while both played in a "basketball doubleheader bill in Atlanta about three years ago." The headline boasts that Bagby's "Two Best Girls Are In Town." (4)
Clearly with a strong support system in place Bagby was able to accomplish great success. He had determination and grit, too. How else do you throw 270 balls during a regular season that features fewer than the 162 games? He must have had the resilience, determination, and drive that only a person with a facial difference calls on in times of struggle. He most likely earned those attributes in much the same way that members of the facial difference community do: through scary medical procedures, enduring teasing, and growing up feeling a little different. With this life experience, he was able to shrug off the pains of being sent to the minor leagues multiple times during his baseball career. Going down to the farm after playing at the major-league level can be demoralizing to a player, forcing them to question their ability to play the game they love. But Bagby persevered, and is quite the inspiration to us all to fight for our dreams.
With hard work, a strong support system, and a heart of gold, anything is possible.
Footnotes1) New York Times, "A Mystery Man Is The End to DiMaggio's Streak," July 15, 1990
2) I intend to do more thorough research about this part of Bagby Jr.'s story. I am very interested in Elfers' claim that photographs of professional athletes were doctored because the public had them up on such a pedestal. I hope to pursue this through Bagby Jr. as an extended research project as a member of the Society for American Baseball Research.
3) Daily Boston Globe, "Beaming Red Sox Recruit Tells His Folks of Victory,"April 19, 1938
4) Daily Boston Globe, "Young Jim Bagby's Two Best Girls Are In Town, June 5, 1938
Tuesday, June 9, 2020
My name is Brianna Legner. I am a soon-to-be graduate of the University of Illinois with a bachelor’s degree in speech and hearing sciences.
While I am involved on campus, my most impactful passion is my involvement with the Miss America Organization. Currently, I hold the title of Miss Springfield 2020 and will compete for Miss Illinois in September.
In order to compete in this organization every candidate must have a platform they promote during their year. My platform is, "It's More Than a Smile", which embraces the uniqueness of children born with a craniofacial difference and helps create a culture of kindness and inclusion. Through my platform, I am fundraising, empowering, and giving hope.
I created my platform to bring awareness to the stories behind the smiles.
This past year, I began my involvement with the Children’s Craniofacial Organization and fell in love with their mission as it perfectly aligned with my goals and values. I loved their curriculum guides and was planning on raising awareness in schools and promoting the #choosekind curriculum before COVID-19 hit. Due to many of my appearances being canceled, I have been searching
for ways to continue promoting CCA’s mission of empowerment.
Recently, I came across a quote from CCA stating, “There will be more children needing to connect with kids just like them next year than ever before”. I thought to myself why next year why not now, and Friendship Fridays was born.
I want to feature some of the amazing children all over the nation on my Miss Springfield social media pages. I am extremely excited for the upcoming Friendship Fridays, but more importantly I am excited to feature these awesome children. If you have an awesome Wonder Kid please contact me at firstname.lastname@example.org.
Thursday, June 4, 2020
Harlena has an M.Ed. Counseling, B.S. Communications & Secondary Education. She has worked as an Educator for 39 years in Pennsylvania and Alabama, for adults & children, and is currently a high school Guidance Counselor for LSS, MDS, Magnet Students and the Military Rep. She's the Parent Leader & Advocate for PA Medical Home Health Initiative, CAC (Citizens Advisory Committee), Volunteer Parent for CCA & FNMS; and the former Parent Rep for Philadelphia Mayor's Office of Disability Services and CHOP Chestnut Hill. She's the loving parent of two adult children, one with Nager Syndrome. She was rasied and resides in Philadelphia, PA.
Michael Douglas, Consumer Engagement Program Manager, North America, MED-EL Corporation
Michael is a Speech-Language Pathologist, Certified Auditory-Verbal Therapist and a Consumer Engagement and Rehabilitation Program Manager for MED-EL Corporation. Before joining MED-EL he spent the last two and a half decades serving children, families and adults with all levels and types of hearing loss in the listening and spoken language approach.
Most importantly, Paula Guzzo is the Wife of Bob, and mother of Scott and Aaron. She has worked as a Pharmaceutical Medical Representative & in Pharmaceutical Sales Training before motherhood. She has also worked for InSource, Indiana's Parent Training & Advocacy Center as a Regional Program Specialist; at Sycamore Services as a Transition Coordinator; at Evansville-Vanderburgh School Corporation (EVSC) as both Coordinator of Parent Supports, Special Education Department, and as the Family Engagement Coordinator for the Academy for Innovative Studies Alternative School. Presently she works at Sycamore Services as Community Consultant.
is a wife, mother, and friend from Springfield, MA. She has an almost eleven year old child, Nova, with Pfeiffer Syndrome, who opened Liz's eyes to the world of parenting a child with complex needs (and parenting in general). These experiences kick started a fierce love of supporting other families in their journeys raising extraordinary humans. Professionally, Liz works at the MA Department of Public Health for the Early Intervention Parent Leadership Project, helping ensure early intervention programming and policies are developed with family voices present, and helping families become engaged across systems of care. In her free time, Liz is an avid maker, who enjoys gardening, cooking, and spending time with her family making the mundane and adventure.
Pedro Molina is celebrating 18 years of marriage to Karla Molina and has three children: Isabella 13, Emilio 11 and Max 9. As a professional, Pedro is a 20-year veteran of the Health and Wellness Industry. In 2011, Max was born with Treacher Collins Syndrome and there began the journey with medical procedures, emotional health and eventually, Special Education. As an advocate for his own son, Pedro attended the Special Education Law and Advocacy Series (SELAS) through the University of San Diego extension program and has personal experience with due process and mediation. He says, “as a parent you know your child more than anyone and you are the most important member of the IEP process.”
Cashel Gaffey, MSW: ConnectMed International Program & Fundraising Coordinator
Dr. Annie Drapeau
Dr. Drapeau is a pediatric neurosurgeon and assistant professor at Nationwide Children’s Hospital and The Ohio State University College of Medicine. Her clinical interests and research mainly focus on patients with craniosynostosis. She enjoys the collaborative work with the craniofacial team.
Dr. Ibrahim Khansa
Dr. Khansa is a pediatric plastic and craniofacial surgeon at Nationwide Children’s Hospital. His passions include craniosynostosis, midface surgery and orthognathic surgery.
Dr. Gregory D. Pearson
Dr. Pearson is a pediatric plastic surgeon and associate professor specializing in craniofacial surgery at Nationwide Children's Hospital. He loves caring for patients with craniosynostosis and cleft lips/palates.
Jerry Carchi is a jack of all trades but master of one, which is his love for his wife, daughter, and the CCA Family. Jerry has roots in Hoboken and now he resides in Ho-Ho-Kus, NJ. Jerry is a self-published author who was inspired to write a children's book about his daughter Sydney, who was born with Pfeiffer Syndrome. Jerry is a Zumba instructor at his local YMCA and Co-Director of a special needs program called Shining Star Express. Jerry has a passion for the art of laughter, love, and happiness, and he uses this energy in everything he does. Jerry is looking to impact the next generation with a positive message of love, acceptance, and kindness for all.
David Roche, Inspirational Humorist
David presents keynote speeches, humor and entertainment at conferences, meetings and fundraisers for corporate events, and for associations, non-profit, educational and disability organizations.
Monday, May 18, 2020
"Superhero Smiles" celebrates the different people whom all need to see us smile each and every day. Jeni hopes to foster a sense of safety and kindness for children as families wade through these uncertain times. The original text of the book was inspired by Jeni's son, who was born with a facial difference, cleft lip and palate. Jeni hopes to "allow families the space to have conversations at home about how to celebrate all children." Something that is very important during this scary time for our kids.
This version of "Superhero Smiles" celebrates the unsung heroes of today, making clear that we should "gift" smiles not only to our friends and family, but also to essential workers and first responders serving on the front lines of this pandemic. While Mr. Rogers encourages us to "look for the helpers," Jeni adds to this sentiment by suggesting that we share a smile to show our gratitude to them.
|Photo Credit: UNICEF|
Happy Reading! And don't forget to smile with style.
Sunday, May 17, 2020
Solidarity amongst charities supporting people with facial differences needed more than ever, so 35 charities unite for International Face Equality Week
This week marks the second International Face Equality Week. Global charities, from Taiwan to South Africa, and North and Latin America, will join forces to continue campaigning for a better, fairer world for people with facial differences.
Despite the unprecedented times stemming from the Covid-19 pandemic, 35 member NGOs of the alliance, Face Equality International, have decided to push forward with a weeklong digital campaign. They will highlight the issues and prejudices people with facial differences experience, including health inequalities, online abuse, and hate crimes.
Advocates worldwide have come together to provide a source of hope, a sense of community, and assurance that their rights are continuing to be fought for across policy, the media, education, and day-to-day life.
Facial difference, sometimes called “disfigurement,” whether congenital or related to trauma or an acquired condition, is a neglected global human rights issue. Members continue to identify amongst the people they work with feelings of low self-esteem in the global ‘look-perfect’ culture, isolation, bullying, staring and questioning in public places, low expectations in school, problems getting work, discrimination in the workplace, abuse on social media and stereotyping in the media. In many countries, looking different goes hand in hand with poverty, prejudice, and exclusion.
This year’s campaign will continue to reshape the narrative around what it’s really like to live with a facial difference right now, by telling real-life stories from across the globe and challenging misconceptions. With a series of films, and a social media based ‘Selfie Challenge,’ the campaign for Face Equality strives for a world where differences are respected, valued, and celebrated.
Taking a selfie, and in turn, taking a stance by sharing it with the world, can be incredibly empowering for someone with a facial difference. Members want to use this year’s International Week to prove that selfies aren’t about ‘looking perfect’ or fitting in with the crowd.
By encouraging online communities beyond those who have facial differences to take part in the campaign, the alliance wishes to create greater understanding, awareness, and solidarity for the cause. In a globalized world that tells us we should look a certain way, the aim is to prove popular opinion wrong, and show the world that you can be confident, proud, and most of all, equal. No matter what your face looks like.
James Partridge, founder and Director of Face Equality International, says:
“International Face Equality Week this year will be marked with many people around the world in lockdown, physically separated from their friends and loved ones. Our intention throughout the Week will be to make common cause with everyone as we endure this awful pandemic — those with facial differences and those without. All human faces should carry equal value and we hope that this Week will help to instil this ‘new’ face value as part of the new normal as we emerge from the pandemic.”
Erica Mossholder, Executive Director of Children’s Craniofacial Association, says:
“Now more than ever talking about our facial differences is relevant. Nearly all of us are at a higher risk for respiratory issues and our unique anatomy affects our use of PPE, like masks. There is no part of our life that has not been affected at some point by having facial difference, but this year, our quest for equality and a voice is a life and death issue. We hope to bring awareness and understanding to the public, all while celebrating our lives and the stories we represent.”
Notes to editors
Erica Mossholder, Executive Director, Children’s Craniofacial Association
Remote interviews can be arranged with Dr. Partridge and other spokespeople. Case studies and interviews available upon request.
For more detail on Face Equality International, please see https://faceequalityinternational.org
For more detail on Children’s Craniofacial Association, please see http://www.ccakids.org
Support the campaign across social media by following @FaceEqualityInt and @CCAKids and use the hashtag #FaceEquality
FEI has member organizations in the following countries:
- Czech Republic
- South Africa
- South Korea
- The Netherlands
- The UK
- The USA
Friday, May 15, 2020
Pre-Order your Virtual Retreat T-Shirt
Tuesday, May 12, 2020
Editor's Note: Our friends at the Gabrielle Miller Kids First Pediatric Research Program's Data Research Center will host their spring public webinar next week on Monday, May 18th from 3:00PM - 5:00PM. Learn more about the work they do, and how it benefits kids with craniofacial conditions. Registration, agenda, and more information appears below.