Happy New Year!
2013 promises to be an exciting year for CCA, starting with the launch of our all-new website at www.ccakids.org. This new website will have frequently updated information and links, including connections to all of our social media outlets.
One of my favorite new sections is the “Choose Kind Wonder” page. It includes a comprehensive list of links about the book, including many educational resources. There is also a downloadable sheet for teachers with instructions on how their students can make a real-life connection to a CCA WonderKid or Sibling!
CCA’s current and past newsletters are available for download on the new website as well as our syndrome booklets, one-sheet overviews, and webinars. You can also browse our CCA Web Store and check out several clearance items. Most importantly, the “Donate Now” icon can’t be missed at the top of every page. Making a contribution is the best way to endorse the new website and to show your support for our other programs and services. CCA’s existence is 100% dependent on donations from individuals and corporations.
Outreach and support for our affected families remains the highest of our priorities. For our CCA families, there is information about registering for the annual retreat, applying for financial assistance, family networking, and finding a qualified craniofacial center. The “Help CCA” section is full of ideas and guidelines on how to host a fundraiser, examples of successful family fundraisers, and information about the “Retreat Reward Program”. Resources about how to raise public awareness will be added as we expand the content.
The CCA Board and Staff look forward to serving our families in 2013. Useful tools like www.ccakids.org and new programs like the CCA WonderKid project are sure to help us “Widen the Circle of Acceptance” and to fulfill or mission of empowering and giving hope to individuals and families affected by facial differences.
Dede Dankelson
CCA Board Chair
Thanks for this website information. One thing I would greatly appreciate as a CCA mom would be a searchable question and answer forum where CCA members could ask questions and share experiences and advice. On Facebook, parents with children who have Apert Syndrome post questions, but it is impossible to go back and find the topics and answers from the past. If CCA doesn't have the resources to start something like this, I will make it my personal goal to get something started. I just haven't had the time yet. Thanks and Happy New Year!
ReplyDeleteAre you signed up for the CCA Yahoo Groups ListServ? I'm in several of those. You can search past posts/emails, which I've found very helpful.
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