Thursday, February 1, 2018

Rare Disease Day Information & Event in Bethesda, MD.

Rare Disease Day is around the corner. It is one month away! This year it lands on February 28th. Spokesperson from the National Institutes of Health (NIH), Chris Gillin, writes to inform us about us about Rare Disease Day and some events around this special day of awareness. Gillian writes,

"Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance. This year’s global theme is "Research” continuing from 2017, and the slogan is “Patients are not only subjects but also proactive actors in research.”

2018 Event Information

Thursday, March 1

8:30 a.m. – 4:00 p.m. ET

Masur Auditorium, Building 10

National Institutes of Health

Bethesda, Maryland

Register Here

Sponsored by NCATS and the NIH Clinical Center (CC), the event will feature presentations, posters, exhibits, an art show and CC tours. Admission is free and open to the public. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. Be sure to follow the event on social media using #RDDNIH.

For more information or to register, please follow this link.

No comments:

Post a Comment

We welcome and encourage all readers to post feedback, however, we reserve the right to remove any comments that are deemed offensive or unrelated to the topic of discussion. Thank you for understanding and for helping us to foster a healthy environment for the families that we serve.