Sunday, April 28, 2019

30 Stories 30 Faces 30 Years: Diana Sweeney

(Editor's Note: Diana Sweeney was featured in the most recent CCA Network Newsletter. We publish her words here for our 30 Stories, 30 Faces, 30 Years celebration so that everyone can read about her impact. Like Charlene "Char" Smith, CCA may not be here without Diana's early involvement in 1989 charting the course toward a bold and beautiful future.)

In 1975, our son was born with unilateral Craniosynostosis, introducing us to the world of facial differences. We were most fortunate to have one of the leading experts in craniofacial surgery change his life and mine in a most positive way.

In 1989, I met some amazing families and had a hand in planning the first CCA Retreat. CCA helped me to realize that easing the way for craniofacial patients and families was my passion, and I have been fortunate to work in this field for 30+ years. Retreat teaches us that we are a family that embraces all differences.

We are a unique family that connects with others to give hope, compassion, education and unconditional support. Thank you CCA for making all of this possible!

-- Diana Sweeney, Parent and Patient Liaison at Children's Hospital of Philadelphia 

Diana Sweeney works diligently as the patient liaison at Children’s Hospital of Philadelphia as the only parent liaison in pediatric plastic surgery in the country. She blends both personal experience and professionalism together to advocate for her patients and their families. In her own words, “They need a voice,” and she’s the woman who works with the craniofacial team to make sure that voice is heard. Diana also organizes events and activities for her CHOP families, and accompanies a handful of them to Retreat each year. Diana knows the value of a strong community, and works tirelessly to make sure her patients have a place to build, grow, and enjoy that community. She has been a part of CCA since the beginning, and we are so very grateful for her leadership, support, and love.

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